Kia ora Anna, 

 

Please find attached a letter relating to your official information act
request.

Ngā mihi 

  

OIA Services Team

Manatū Hauora | Ministry of Health

M[1]inistry of Health information releases 
U[2]nite against COVID-19 

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From: Anna <[FYI request #21791 email]>
Sent: Friday, 10 February 2023 15:29
To: OIA Requests <[email address]>
Subject: Official Information request - Creutzfeldt-Jakob disease /
spongiform encephalopathies
 
Dear Ministry of Health,

May I please have the numbers of New Zealanders diagnosed with
Creutzfeldt-Jakob disease, or other spongiform encephalopathies for the
following years?

2017
2018
2019
2020
2021
2022
2023 (if any data is available so far)

Yours faithfully,

Anna

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This is an Official Information request made via the FYI website.

Please use this email address for all replies to this request:
[FYI request #21791 email]

Is [Ministry of Health request email] the wrong address for Official Information requests
to Ministry of Health? If so, please contact us using this form:
[3]https://scanmail.trustwave.com/?c=15517&...

Disclaimer: This message and any reply that you make will be published on
the internet. Our privacy and copyright policies:
[4]https://scanmail.trustwave.com/?c=15517&...

If you find this service useful as an Official Information officer, please
ask your web manager to link to us from your organisation's OIA or LGOIMA
page.

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Tēnā koe, 

 

Thank you for contacting Te Whatu Ora, Health NZ. This is an automatic
reply to confirm that we have received your email.  Depending on the
nature of your request you may not receive a response for up to 20 working
days.  We will try to respond to your query as quickly as possible.

s information that is identified to be of general public interest, the
response may also be published on our website. If we e response to your
OIA request, all personal information, including your name and contact
details will be removed.

 

Ngā mihi

 

Te Whatu Ora, Health NZ.

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Kia ora Anna

Thank you for your request for official information, received on 15
February 2023 for:
“May I please have the numbers of New Zealanders diagnosed with
Creutzfeldt-Jakob disease, or other spongiform encephalopathies for the
following years? 2017 2018 2019 2020 2021 2022 2023 (if any data is
available so far)”

Te Whatu Ora’s system codes subacute spongiform encephalopathy on the same
code as Creutzfeldt-Jakob disease, and only holds data on the number of
hospitalisations with these causes as the primary diagnosis rather than
the number of people who have these diseases.

In order for Te Whatu Ora – Health New Zealand to progress with your
request, we would like to confirm that you are happy to refine your
request to the below:
“May I please have the numbers of New Zealanders hospitalised for
Creutzfeldt-Jakob disease from 2017 – 2023”.

Please note, under section 15 of the Official Information Act 1982, any
clarification or amendments made to a request within seven days after the
date it is received, may be treated as a new request and the time limit
for the response restarts.

I would note that the University of Otago’s Department of Medicine
maintains a CJD registry
([1]https://www.otago.ac.nz/cjd-registry/ind...), which may be able to
assist you.

If you have any questions, please get in touch at
[2][email address].

Ngâ mihi

Ministerial Services
 
  
Te Whatu Ora – Health New Zealand
TeWhatuOra.govt.nz
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distribute or copy this message or attachments.
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immediately and delete this message.
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2. mailto:[email address]

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Kia ora Anna, 
 
We are currently processing your request, with a due date for your
response on 20 March 2023. 
 
If we are unable to meet this deadline, we will be in contact to discuss. 
 
Thank you, 
 
 
------------------- Original Message -------------------
From: Anna . <[FOI #21791 email]>;
Received: Wed Mar 15 2023 07:45:24 GMT+1300 (New Zealand Daylight Time)
To: hnzOIA <[email address]>; HNZ OIA <[email address]>;
Subject: Re: Refinement of your request for official information -
HNZ00011571 CRM:0342077

Dear hnzOIA,

Hello,

I'm just checking to see if my request is still being processed.

Yours sincerely,

Anna

-----Original Message-----

Kia ora Anna

 Thank you for your request for official information, received on 15
 February 2023 for:
 “May I please have the numbers of New Zealanders diagnosed with
 Creutzfeldt-Jakob disease, or other spongiform encephalopathies for the
 following years? 2017 2018 2019 2020 2021 2022 2023 (if any data is
 available so far)”

 Te Whatu Ora’s system codes subacute spongiform encephalopathy on the
same
 code as Creutzfeldt-Jakob disease, and only holds data on the number of
 hospitalisations with these causes as the primary diagnosis rather than
 the number of people who have these diseases.

 In order for Te Whatu Ora – Health New Zealand to progress with your
 request, we would like to confirm that you are happy to refine your
 request to the below:
 “May I please have the numbers of New Zealanders hospitalised for
 Creutzfeldt-Jakob disease from 2017 – 2023”.

 Please note, under section 15 of the Official Information Act 1982, any
 clarification or amendments made to a request within seven days after the
 date it is received, may be treated as a new request and the time limit
 for the response restarts.

 I would note that the University of Otago’s Department of Medicine
 maintains a CJD registry
 ([1]https://www.otago.ac.nz/cjd-registry/ind...), which may be able
to
 assist you.

 If you have any questions, please get in touch at
 [2][email address].

 Ngâ mihi

 Ministerial Services
  
   
 Te Whatu Ora – Health New Zealand
 [1]http://scanmail.trustwave.com/?c=15517&a...
 
 
References

 Visible links
 1.
[2]https://scanmail.trustwave.com/?c=15517&...
 2. [3]mailto:[email address]

-------------------------------------------------------------------
Please use this email address for all replies to this request:
[FOI #21791 email]

Disclaimer: This message and any reply that you make will be published on
the internet. Our privacy and copyright policies:
[4]https://scanmail.trustwave.com/?c=15517&...

If you find this service useful as an Official Information officer, please
ask your web manager to link to us from your organisation's OIA or LGOIMA
page.

-------------------------------------------------------------------
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distribute or copy this message or attachments.
If you have received this message in error, please notify the sender
immediately and delete this message.
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3. mailto:[email
4. https://scanmail.trustwave.com/?c=15517&...

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Kia ora Anna
 
Thank you for your request for official information. Please find attached
our response to your request.
 
If you have any questions, please get in touch at
[1][email address].
 
If you are not happy with this response, you have the right to make a
complaint to the Ombudsman. Information about how to do this is available
at [2]www.ombudsman.parliament.nz or by phoning 0800 802 602.
 
Ngā mihi,
 
Te Whatu Ora Ministerial Team
 
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