7 - ADHD Medicines, Funding, Access, and Equity

Elspeth Baker-Vevers made this Official Information request to Pharmaceutical Management Agency

Currently waiting for a response from Pharmaceutical Management Agency, they must respond promptly and normally no later than (details and exceptions).

From: Elspeth Baker-Vevers

Kia ora,

I’m making this Official Information Act request as part of ADHDInquiryNZ, a grassroots, unfunded, and non-partisan volunteer initiative supporting a public petition calling for a Parliamentary inquiry into systemic harm to people with ADHD in Aotearoa. This request focuses on information held by your agency to help identify how ADHD is currently recognised within existing systems. The information gathered from this and related requests will help identify patterns across agencies and contribute to evidence provided to the Petitions Committee when the petition period closes. I appreciate the time involved in OIA responses.

Please treat this as a request for official information under the OIA. I am requesting the specific information listed below. I understand Pharmac’s obligation to assist under s 13 and that a decision should be made within 20 working days of receipt (or transfer within 10 working days). If any part of this request requires clarification, please let me know no later than 5 working days from receipt. If an extension under s 15A is needed, please state the reason and duration. This request is confined to information held by Pharmac; please do not transfer for commentary.

Time period: This request covers the period 1 January 2015 to the date this request is received.

Format: Where datasets, tables, or modelling outputs are provided, I request they be supplied in machine-readable format (CSV or original spreadsheet file), along with any data dictionaries or field definitions.

Scope clarification to reduce unnecessary work
To streamline this request, I am not seeking internal email chains or drafts unless they are the only record of the substantive information described.
To avoid any uncertainty, I confirm I am seeking information already held by Pharmac and am not asking for new modelling or analysis to be created.
If any part of this request is likely to be refused under s 18(f) due to substantial collation, please identify that specific part early so I can refine it.

Please provide:
1. Policies, Funding Criteria, and Decisions
Any policies, clinical criteria, funding criteria, PTAC/PTAC Subcommittee advice, Schedule decisions, or internal decision documents since 2015 that relate to ADHD medicines, including both stimulant and non-stimulant classes.

2. Funded Prescription Data
Annual counts of funded prescriptions for ADHD relevant medicines (e.g., methylphenidate formulations, dexamfetamine, lisdexamfetamine, atomoxetine, guanfacine), broken down by:
-medicine type
-age
-sex (as recorded in NHI/dispensing datasets)
-region
-ethnicity
for each of the past ten financial years, or for as many years as data are held in this form.

3. Equity, Access, and Barriers
Any advice, analysis, reports, or correspondence discussing:
-barriers to equitable access
-cultural-safety considerations
-regional variability
-prescribing constraints
-unmet need
-delays in access or inequities relating to ADHD medicines

4. Data Gaps and System Limitations
Any internal documents, memos, or correspondence noting:
-gaps in ADHD-related medicine data
-limitations in monitoring or reporting
-issues with categorisation or coding of ADHD medicines
-constraints preventing Pharmac from analysing ADHD-related access or outcomes

If none exist, please confirm this.

5. Equity or Effectiveness Monitoring
Any evaluation, monitoring, or review reports produced or held by Pharmac that assess:
-equity of access to ADHD medicines
-effectiveness or appropriateness of funded ADHD medicines
-distributional impacts (e.g., Māori, Pacific, or high needs communities)

If no ADHD-specific monitoring exists, please confirm this.

6. Supply Disruptions
Any supply disruption notices, risk registers, internal discussion, or correspondence with manufacturers or distributors regarding ADHD medicines since 2015.

7. Categorisation if Not ADHD Specific
If Pharmac does not hold ADHD-specific material for any of the items above, please confirm this and indicate how such medicines or data are categorised in Pharmac systems (e.g., under mental health, paediatrics, neurodevelopmental conditions, or pharmaceutical groupings).

8. Co-prescribing or Sequential Prescribing (Dispensing Data Only)
Please provide any existing dispensing datasets, summaries, or internal information held by Pharmac showing co-prescribing or sequential prescribing patterns involving ADHD medicines (e.g., dispensing alongside or following antidepressants or anxiolytics).

I am not requesting any new analysis or evaluation, only information already held.
If Pharmac holds only raw dispensing combinations (and no analysis), please confirm this.
If Pharmac does not hold such information, please confirm this and note whether data structures would allow such analysis if commissioned.

9. Gaps / Non-collection
If Pharmac does not hold some or all of the information requested, this absence also helps clarify how ADHD medicines are tracked and managed across the system.

Please confirm if the information is not held, and include any documents recording:
-decisions not to collect ADHD-related information
-decisions to aggregate ADHD medicines under other categories
-known limitations in data, reporting, or tracking

Ngā mihi,
Elspeth Baker-Vevers

Link to this

From: Web Enquiry
Pharmaceutical Management Agency

Thank you for contacting Pharmac, we have received your enquiry and will
endeavour to have a reply to you as soon as we can.

 

Pharmac cannot provide medical advice. If you have questions about your
health or are experiencing side effects from medicines, please call:

·        Your usual healthcare provider.

·         Healthline on 0800 611 116.

·         111 for medical emergencies. 
This e-mail message and any accompanying attachments may contain
confidential information. If you are not the intended recipient, please do
not read, use, disseminate, distribute or copy this message or
attachments. If you have received this message in error, please notify the
sender immediately and delete this message.

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From: Ministerial
Pharmaceutical Management Agency

Kia ora Elspeth

Thank you for your request for official information, which Pharmac received on 2 December 2025. The reference number for your request is: 2025-26-114

You should receive a response from us on or before 21 January 2026. This is within the 20 working day limit set out in the Official Information Act.

Please contact us if you have any questions.

Ngâ mihi,

Government Services | Pharmac
___________________________________________________________________
Pharmac - Te Pâtaka Whaioranga | Level 9, 40 Mercer Street, Wellington
www.pharmac.govt.nz

-----Original Message-----
From: Elspeth Baker-Vevers <[FOI #33090 email]>
Sent: Tuesday, 2 December 2025 12:21 am
To: Web Enquiry <[email address]>
Subject: F-2593 Official Information request - 7 - ADHD Medicines, Funding, Access, and Equity

[You don't often get email from [FOI #33090 email]. Learn why this is important at https://aka.ms/LearnAboutSenderIdentific... ]

Kia ora,

I’m making this Official Information Act request as part of ADHDInquiryNZ, a grassroots, unfunded, and non-partisan volunteer initiative supporting a public petition calling for a Parliamentary inquiry into systemic harm to people with ADHD in Aotearoa. This request focuses on information held by your agency to help identify how ADHD is currently recognised within existing systems. The information gathered from this and related requests will help identify patterns across agencies and contribute to evidence provided to the Petitions Committee when the petition period closes. I appreciate the time involved in OIA responses.

Please treat this as a request for official information under the OIA. I am requesting the specific information listed below. I understand Pharmac’s obligation to assist under s 13 and that a decision should be made within 20 working days of receipt (or transfer within 10 working days). If any part of this request requires clarification, please let me know no later than 5 working days from receipt. If an extension under s 15A is needed, please state the reason and duration. This request is confined to information held by Pharmac; please do not transfer for commentary.

Time period: This request covers the period 1 January 2015 to the date this request is received.

Format: Where datasets, tables, or modelling outputs are provided, I request they be supplied in machine-readable format (CSV or original spreadsheet file), along with any data dictionaries or field definitions.

Scope clarification to reduce unnecessary work To streamline this request, I am not seeking internal email chains or drafts unless they are the only record of the substantive information described.
To avoid any uncertainty, I confirm I am seeking information already held by Pharmac and am not asking for new modelling or analysis to be created.
If any part of this request is likely to be refused under s 18(f) due to substantial collation, please identify that specific part early so I can refine it.

Please provide:
1. Policies, Funding Criteria, and Decisions Any policies, clinical criteria, funding criteria, PTAC/PTAC Subcommittee advice, Schedule decisions, or internal decision documents since 2015 that relate to ADHD medicines, including both stimulant and non-stimulant classes.

2. Funded Prescription Data
Annual counts of funded prescriptions for ADHD relevant medicines (e.g., methylphenidate formulations, dexamfetamine, lisdexamfetamine, atomoxetine, guanfacine), broken down by:
-medicine type
-age
-sex (as recorded in NHI/dispensing datasets) -region -ethnicity for each of the past ten financial years, or for as many years as data are held in this form.

3. Equity, Access, and Barriers
Any advice, analysis, reports, or correspondence discussing:
-barriers to equitable access
-cultural-safety considerations
-regional variability
-prescribing constraints
-unmet need
-delays in access or inequities relating to ADHD medicines

4. Data Gaps and System Limitations
Any internal documents, memos, or correspondence noting:
-gaps in ADHD-related medicine data
-limitations in monitoring or reporting
-issues with categorisation or coding of ADHD medicines -constraints preventing Pharmac from analysing ADHD-related access or outcomes

If none exist, please confirm this.

5. Equity or Effectiveness Monitoring
Any evaluation, monitoring, or review reports produced or held by Pharmac that assess:
-equity of access to ADHD medicines
-effectiveness or appropriateness of funded ADHD medicines -distributional impacts (e.g., Mâori, Pacific, or high needs communities)

If no ADHD-specific monitoring exists, please confirm this.

6. Supply Disruptions
Any supply disruption notices, risk registers, internal discussion, or correspondence with manufacturers or distributors regarding ADHD medicines since 2015.

7. Categorisation if Not ADHD Specific
If Pharmac does not hold ADHD-specific material for any of the items above, please confirm this and indicate how such medicines or data are categorised in Pharmac systems (e.g., under mental health, paediatrics, neurodevelopmental conditions, or pharmaceutical groupings).

8. Co-prescribing or Sequential Prescribing (Dispensing Data Only) Please provide any existing dispensing datasets, summaries, or internal information held by Pharmac showing co-prescribing or sequential prescribing patterns involving ADHD medicines (e.g., dispensing alongside or following antidepressants or anxiolytics).

I am not requesting any new analysis or evaluation, only information already held.
If Pharmac holds only raw dispensing combinations (and no analysis), please confirm this.
If Pharmac does not hold such information, please confirm this and note whether data structures would allow such analysis if commissioned.

9. Gaps / Non-collection
If Pharmac does not hold some or all of the information requested, this absence also helps clarify how ADHD medicines are tracked and managed across the system.

Please confirm if the information is not held, and include any documents recording:
-decisions not to collect ADHD-related information -decisions to aggregate ADHD medicines under other categories -known limitations in data, reporting, or tracking

Ngâ mihi,
Elspeth Baker-Vevers

-------------------------------------------------------------------

This e-mail message and any accompanying attachments may contain confidential information. If you are not the intended recipient, please do not read, use, disseminate, distribute or copy this message or attachments. If you have received this message in error, please notify the sender immediately and delete this message.

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From: Ministerial
Pharmaceutical Management Agency

Kia ora Elspeth,

Thank you for your request under the Official Information Act.

Your request would involve substantial collation or research and would likely be refused under s 18(f) of the Act.

To give an indication, a search of the Pharmac database on the search parameter ADHD + Data yielded 5,443 results, while a search on the parameter ADHD + Schedule yielded 5,521 results.

Accordingly, we suggest refining your request to cover the period 1 January 2025 to the date this request was received.

Please confirm if you are happy for us to proceed with our response to your request, with this refinement.

The timeframe of your request will be restarted once your clarification has been confirmed as per s15(1AA) of the Official Information Act.

Ngâ mihi,
Government Services | Pharmac
___________________________________________________________________
Pharmac - Te Pâtaka Whaioranga | Level 9, 40 Mercer Street, Wellington
www.pharmac.govt.nz

-----Original Message-----
From: Elspeth Baker-Vevers <[FOI #33090 email]>
Sent: Tuesday, 2 December 2025 12:21 am
To: Web Enquiry <[email address]>
Subject: F-2593 Official Information request - 7 - ADHD Medicines, Funding, Access, and Equity

[You don't often get email from [FOI #33090 email]. Learn why this is important at https://aka.ms/LearnAboutSenderIdentific... ]

Kia ora,

I’m making this Official Information Act request as part of ADHDInquiryNZ, a grassroots, unfunded, and non-partisan volunteer initiative supporting a public petition calling for a Parliamentary inquiry into systemic harm to people with ADHD in Aotearoa. This request focuses on information held by your agency to help identify how ADHD is currently recognised within existing systems. The information gathered from this and related requests will help identify patterns across agencies and contribute to evidence provided to the Petitions Committee when the petition period closes. I appreciate the time involved in OIA responses.

Please treat this as a request for official information under the OIA. I am requesting the specific information listed below. I understand Pharmac’s obligation to assist under s 13 and that a decision should be made within 20 working days of receipt (or transfer within 10 working days). If any part of this request requires clarification, please let me know no later than 5 working days from receipt. If an extension under s 15A is needed, please state the reason and duration. This request is confined to information held by Pharmac; please do not transfer for commentary.

Time period: This request covers the period 1 January 2015 to the date this request is received.

Format: Where datasets, tables, or modelling outputs are provided, I request they be supplied in machine-readable format (CSV or original spreadsheet file), along with any data dictionaries or field definitions.

Scope clarification to reduce unnecessary work To streamline this request, I am not seeking internal email chains or drafts unless they are the only record of the substantive information described.
To avoid any uncertainty, I confirm I am seeking information already held by Pharmac and am not asking for new modelling or analysis to be created.
If any part of this request is likely to be refused under s 18(f) due to substantial collation, please identify that specific part early so I can refine it.

Please provide:
1. Policies, Funding Criteria, and Decisions Any policies, clinical criteria, funding criteria, PTAC/PTAC Subcommittee advice, Schedule decisions, or internal decision documents since 2015 that relate to ADHD medicines, including both stimulant and non-stimulant classes.

2. Funded Prescription Data
Annual counts of funded prescriptions for ADHD relevant medicines (e.g., methylphenidate formulations, dexamfetamine, lisdexamfetamine, atomoxetine, guanfacine), broken down by:
-medicine type
-age
-sex (as recorded in NHI/dispensing datasets) -region -ethnicity for each of the past ten financial years, or for as many years as data are held in this form.

3. Equity, Access, and Barriers
Any advice, analysis, reports, or correspondence discussing:
-barriers to equitable access
-cultural-safety considerations
-regional variability
-prescribing constraints
-unmet need
-delays in access or inequities relating to ADHD medicines

4. Data Gaps and System Limitations
Any internal documents, memos, or correspondence noting:
-gaps in ADHD-related medicine data
-limitations in monitoring or reporting
-issues with categorisation or coding of ADHD medicines -constraints preventing Pharmac from analysing ADHD-related access or outcomes

If none exist, please confirm this.

5. Equity or Effectiveness Monitoring
Any evaluation, monitoring, or review reports produced or held by Pharmac that assess:
-equity of access to ADHD medicines
-effectiveness or appropriateness of funded ADHD medicines -distributional impacts (e.g., Mâori, Pacific, or high needs communities)

If no ADHD-specific monitoring exists, please confirm this.

6. Supply Disruptions
Any supply disruption notices, risk registers, internal discussion, or correspondence with manufacturers or distributors regarding ADHD medicines since 2015.

7. Categorisation if Not ADHD Specific
If Pharmac does not hold ADHD-specific material for any of the items above, please confirm this and indicate how such medicines or data are categorised in Pharmac systems (e.g., under mental health, paediatrics, neurodevelopmental conditions, or pharmaceutical groupings).

8. Co-prescribing or Sequential Prescribing (Dispensing Data Only) Please provide any existing dispensing datasets, summaries, or internal information held by Pharmac showing co-prescribing or sequential prescribing patterns involving ADHD medicines (e.g., dispensing alongside or following antidepressants or anxiolytics).

I am not requesting any new analysis or evaluation, only information already held.
If Pharmac holds only raw dispensing combinations (and no analysis), please confirm this.
If Pharmac does not hold such information, please confirm this and note whether data structures would allow such analysis if commissioned.

9. Gaps / Non-collection
If Pharmac does not hold some or all of the information requested, this absence also helps clarify how ADHD medicines are tracked and managed across the system.

Please confirm if the information is not held, and include any documents recording:
-decisions not to collect ADHD-related information -decisions to aggregate ADHD medicines under other categories -known limitations in data, reporting, or tracking

Ngâ mihi,
Elspeth Baker-Vevers

-------------------------------------------------------------------

This e-mail message and any accompanying attachments may contain confidential information. If you are not the intended recipient, please do not read, use, disseminate, distribute or copy this message or attachments. If you have received this message in error, please notify the sender immediately and delete this message.

hide quoted sections

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From: Ministerial
Pharmaceutical Management Agency

Kia ora Elspeth,

Thank you for your request under the Official Information Act.

This is a reminder that Pharmac is waiting on your response to our refinement request below.

Ngâ mihi,
Government Services | Pharmac
___________________________________________________________________
Pharmac - Te Pâtaka Whaioranga | Level 9, 40 Mercer Street, Wellington www.pharmac.govt.nz

-----Original Message-----
From: Ministerial
Sent: Thursday, 11 December 2025 4:47 pm
To: '[FOI #33090 email]' <[FOI #33090 email]>
Subject: RE: Refinement of your request for official information - OIA2025-26-114

Kia ora Elspeth,

Thank you for your request under the Official Information Act.

Your request would involve substantial collation or research and would likely be refused under s 18(f) of the Act.

To give an indication, a search of the Pharmac database on the search parameter ADHD + Data yielded 5,443 results, while a search on the parameter ADHD + Schedule yielded 5,521 results.

Accordingly, we suggest refining your request to cover the period 1 January 2025 to the date this request was received.

Please confirm if you are happy for us to proceed with our response to your request, with this refinement.

The timeframe of your request will be restarted once your clarification has been confirmed as per s15(1AA) of the Official Information Act.

Ngâ mihi,
Government Services | Pharmac
___________________________________________________________________
Pharmac - Te Pâtaka Whaioranga | Level 9, 40 Mercer Street, Wellington www.pharmac.govt.nz

-----Original Message-----
From: Elspeth Baker-Vevers <[FOI #33090 email]>
Sent: Tuesday, 2 December 2025 12:21 am
To: Web Enquiry <[email address]>
Subject: F-2593 Official Information request - 7 - ADHD Medicines, Funding, Access, and Equity

[You don't often get email from [FOI #33090 email]. Learn why this is important at https://aka.ms/LearnAboutSenderIdentific... ]

Kia ora,

I’m making this Official Information Act request as part of ADHDInquiryNZ, a grassroots, unfunded, and non-partisan volunteer initiative supporting a public petition calling for a Parliamentary inquiry into systemic harm to people with ADHD in Aotearoa. This request focuses on information held by your agency to help identify how ADHD is currently recognised within existing systems. The information gathered from this and related requests will help identify patterns across agencies and contribute to evidence provided to the Petitions Committee when the petition period closes. I appreciate the time involved in OIA responses.

Please treat this as a request for official information under the OIA. I am requesting the specific information listed below. I understand Pharmac’s obligation to assist under s 13 and that a decision should be made within 20 working days of receipt (or transfer within 10 working days). If any part of this request requires clarification, please let me know no later than 5 working days from receipt. If an extension under s 15A is needed, please state the reason and duration. This request is confined to information held by Pharmac; please do not transfer for commentary.

Time period: This request covers the period 1 January 2015 to the date this request is received.

Format: Where datasets, tables, or modelling outputs are provided, I request they be supplied in machine-readable format (CSV or original spreadsheet file), along with any data dictionaries or field definitions.

Scope clarification to reduce unnecessary work To streamline this request, I am not seeking internal email chains or drafts unless they are the only record of the substantive information described.
To avoid any uncertainty, I confirm I am seeking information already held by Pharmac and am not asking for new modelling or analysis to be created.
If any part of this request is likely to be refused under s 18(f) due to substantial collation, please identify that specific part early so I can refine it.

Please provide:
1. Policies, Funding Criteria, and Decisions Any policies, clinical criteria, funding criteria, PTAC/PTAC Subcommittee advice, Schedule decisions, or internal decision documents since 2015 that relate to ADHD medicines, including both stimulant and non-stimulant classes.

2. Funded Prescription Data
Annual counts of funded prescriptions for ADHD relevant medicines (e.g., methylphenidate formulations, dexamfetamine, lisdexamfetamine, atomoxetine, guanfacine), broken down by:
-medicine type
-age
-sex (as recorded in NHI/dispensing datasets) -region -ethnicity for each of the past ten financial years, or for as many years as data are held in this form.

3. Equity, Access, and Barriers
Any advice, analysis, reports, or correspondence discussing:
-barriers to equitable access
-cultural-safety considerations
-regional variability
-prescribing constraints
-unmet need
-delays in access or inequities relating to ADHD medicines

4. Data Gaps and System Limitations
Any internal documents, memos, or correspondence noting:
-gaps in ADHD-related medicine data
-limitations in monitoring or reporting
-issues with categorisation or coding of ADHD medicines -constraints preventing Pharmac from analysing ADHD-related access or outcomes

If none exist, please confirm this.

5. Equity or Effectiveness Monitoring
Any evaluation, monitoring, or review reports produced or held by Pharmac that assess:
-equity of access to ADHD medicines
-effectiveness or appropriateness of funded ADHD medicines -distributional impacts (e.g., Mâori, Pacific, or high needs communities)

If no ADHD-specific monitoring exists, please confirm this.

6. Supply Disruptions
Any supply disruption notices, risk registers, internal discussion, or correspondence with manufacturers or distributors regarding ADHD medicines since 2015.

7. Categorisation if Not ADHD Specific
If Pharmac does not hold ADHD-specific material for any of the items above, please confirm this and indicate how such medicines or data are categorised in Pharmac systems (e.g., under mental health, paediatrics, neurodevelopmental conditions, or pharmaceutical groupings).

8. Co-prescribing or Sequential Prescribing (Dispensing Data Only) Please provide any existing dispensing datasets, summaries, or internal information held by Pharmac showing co-prescribing or sequential prescribing patterns involving ADHD medicines (e.g., dispensing alongside or following antidepressants or anxiolytics).

I am not requesting any new analysis or evaluation, only information already held.
If Pharmac holds only raw dispensing combinations (and no analysis), please confirm this.
If Pharmac does not hold such information, please confirm this and note whether data structures would allow such analysis if commissioned.

9. Gaps / Non-collection
If Pharmac does not hold some or all of the information requested, this absence also helps clarify how ADHD medicines are tracked and managed across the system.

Please confirm if the information is not held, and include any documents recording:
-decisions not to collect ADHD-related information -decisions to aggregate ADHD medicines under other categories -known limitations in data, reporting, or tracking

Ngâ mihi,
Elspeth Baker-Vevers

-------------------------------------------------------------------

This e-mail message and any accompanying attachments may contain confidential information. If you are not the intended recipient, please do not read, use, disseminate, distribute or copy this message or attachments. If you have received this message in error, please notify the sender immediately and delete this message.

hide quoted sections

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From: Elspeth Baker-Vevers

Kia ora,

Thank you for the reminder, and apologies for the delay in responding, I had a temporary email issue which affected notifications.

I would like to clarify the intent of my original request before confirming any refinement.

While I understand that retrieving large volumes of raw records could raise s18(f) concerns, many parts of my request are not seeking bulk extraction or new analysis. In particular, several questions ask whether Pharmac holds any documents at all relating to:

• known data gaps or limitations
• equity or effectiveness monitoring (or confirmation that none exists)
• supply disruption notices or risk registers
• how ADHD medicines are categorised if not tracked specifically as ADHD
• decisions not to collect or disaggregate ADHD-related information

These elements could be answered by releasing existing documents, or by confirming that no such information is held, without requiring large scale collation.

For the dispensing / co-prescribing component, I am not requesting new analysis. If only raw dispensing combinations are held, or if Pharmac does not hold this information at all, confirmation of that would be sufficient.

Before agreeing to a time-based refinement, I would appreciate confirmation of whether Pharmac is able to respond to the non-dataset components of the request as outlined above, and whether any specific parts (rather than the request as a whole) are considered to raise s18(f) issues.

Ngā mihi,
Elspeth

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