Lou Gehrig's Disease (ALS) and Motor Neuron Disease (MND)
Amy Ferguson made this Official Information request to Ministry of Health
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From: Amy Ferguson
Dear Ministry of Health,
I am writing to request information under the Official Information Act 1982 (OIA). I would like to know more about the prevalence of Lou Gehrig's Disease (also known as Amyotrophic Lateral Sclerosis or ALS) and Motor Neuron Disease (MND) in New Zealand.
Specifically, I am seeking the following information:
1.The total number of New Zealand-born citizens who are currently living with Lou Gehrig's Disease (ALS) or Motor Neuron Disease (MND).
2.A clarification on whether Lou Gehrig's Disease (ALS) is the same as Motor Neuron Disease (MND) or if there are any differences between the two conditions.
3.If there are differences between Lou Gehrig's Disease (ALS) and Motor Neuron Disease (MND), please provide the total number of people living with each condition separately.
4.A demographic breakdown of people living with Lou Gehrig's Disease (ALS) or Motor Neuron Disease (MND), including age distribution and any known risk factors or causes of the disease.
5.Historical data on the prevalence of Lou Gehrig's Disease (ALS) or Motor Neuron Disease (MND) in New Zealand, particularly any observed trends in the number of cases and any potential reasons for these trends.
I understand that under the OIA, I should receive a response to my request within 20 working days of the date it was received. If my request is too broad or unclear, please contact me so that I can provide any necessary clarification.
Thank you for your assistance in this matter.
Sincerely,
Amy Ferguson
From: OIA Requests
Kia ora
Thank you for your request for official information. The reference number
for your request is: H2023024127
As required under the Official Information Act 1982, Manatū Hauora will
endeavour to respond to your request no later than 20 working days after
the day your request was received. If you'd like to calculate the
timeframe, you can use the Ombudsman's online calculator
here: [1]http://www.ombudsman.parliament.nz/
If you have any queries related to this request, please do not hesitate to
get in touch.
Ngā mihi
OIA Services Team
M[2]inistry of Health information releases
U[3]nite against COVID-19
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References
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1. http://www.ombudsman.parliament.nz/
2. https://www.health.govt.nz/about-ministr...
3. https://covid19.govt.nz/
From: OIA Requests
Kia ora Amy
Please find attached a letter regarding your request for official
information. Under section 28(3) of the Act you have the right to ask the
Ombudsman to review any decisions made under this request. The Ombudsman
may be contacted by email at: [email address] or by calling
0800 802 602.
Ngā mihi
OIA Services Team
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From: hnzOIA
Kia ora Amy,
Thank you for your request for information on 18 May 2023. Please find
attached our response to your request.
If you have any questions, please get in touch at
[1][email address].
If you are not happy with this response, you have the right to make a
complaint to the Ombudsman. Information about how to do this is available
at [2]www.ombudsman.parliament.nz or by phoning 0800 802 602.
Ngâ mihi,
Te Whatu Ora Ministerial Team
Spark Central, 44-48 Willis Street, Wellington| PO Box 5013, Wellington
6140
Te Whatu Ora – Health New Zealand
[3]www.TeWhatuOra.govt.nz
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References
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1. mailto:[email address]
2. file:///tmp/foiextract20230529-24703-tczlyv#
3. http://www.tewhatuora.govt.nz/
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