Tēnā koe, 

 

Thank you for contacting Health NZ, Te Whatu Ora. This is an automatic
reply to confirm that we have received your email.  Depending on the
nature of your request you may not receive a response for up to 20 working
days.  We will try to respond to your query as quickly as possible.

 

Ngā mihi

 

Health NZ, Te Whatu Ora.

 

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Please note your reference number for this request is HNZ00076506.

 

Ngā mihi

 

Health NZ, Te Whatu Ora.
 

show quoted sections

Tēnā koe Jacqui

 

Thank you for your request of 19 January 2025 (ref. HNZ00076506) for the
following information:

 

The health and disability commissioner wrote to Health New Zealand and the
ministry of health on 9th May 2024 to seek a response to address concerns
about poor co-ordination (between specialties and between public and
private sector services), lack of consistent treatment protocols, long
delays in diagnosis and misattribution of symptoms to mental health
conditions, resistance to accept EDS diagnosis, and a lack of information
provision to families about treatment options including international
options.

Please can you release all the information that has been investigated,
researched, developed or assembled as of the date of your response to this
request, which may inform the Health New Zealand's response to HDC's
letter, including but not limited to any response made to the health and
disability commissioner and any correspondence, meeting minutes,
background briefing or documents produced in support of developing a
potential response, and any records of meetings or correspondence with the
ministry of health. 

I would also be grateful for any background reports or briefings Te Whatu
Ora has that relate to these issues (including but not limited to
purchasing and public funding of treatment options and evidence reviews
and assessment) which predate the HDC's letter since the establishment of
Te Whatu Ora in July 2022.
 

I note that you have already asked for similar information as part of
your request to Health New Zealand | Te Whatu Ora dated 21 November 2024
(ref. HNZ00072944) which was also agreed to be refined on 7 January 2025.
Due to the frequency and the similarity of the subject matter forming the
basis of requests, namely information about the Health and Disability
Commissioner's letter dated 9 May 2024, and in order to manage your
request and provide you with information based on your earlier request for
information, we will close HNZ00076506. Health New Zealand is currently
responding to HNZ00072944 and it is expected that you will receive a
decision by 11 March 2025, earlier if possible.

 

If you have any questions, please get in touch
at [1][email address].

If you are not happy with this response, you have the right to make a
complaint to the Ombudsman. Information about how to do this is
available at [2]www.ombudsman.parliament.nz or by phoning 0800 802 602.

 

Ngā mihi, 
 

Eden 

Advisor | Kaitohutohu

Government Services (OIA)

Health New Zealand | Te Whatu Ora

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References

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2. http://www.ombudsman.parliament.nz/