Document 1
FILE NOTE
Subject:
Pharmac/Diabetes NZ
Event Type:
Meeting
Author:
Conal Edwards
Attendees:
Pharmac
Conal Edwards – Senior Therapeutic Group Manager
Josh Cronin-Lampe – Senior Therapeutic Group Manager
Rosa Bach – Communications Advisor
Diabetes NZ
Heather Verry – Chief Executive Diabetes NZ
Jo Chapman – Head of Business Development
Liz Dutton – Head of Clinical Services
Sarah Pritchard – Communications Coordinator
Claire Meiralles – Marketing Manager
Location:
DNZ – Head Office
Date event took place:
30 April 2024
Meeting objectives
•
Understand the role of Diabetes NZ in supporting the proposal for the funding of
CGMs/Insulin Pumps;
•
Identify key areas that should be focused on leading up to the proposed listing date.
•
Pharmac personnel to meet the key contacts at DNZ who wil be working on the process
Discussion
HV – Gave the perspective from DNZ as to how they would see DNZ being part of the supporting
process in the implementation of the CGM / Insulin pump proposal. Made the point that
wherever possible it would be the preference that DNZ out reference to other direct sources of
information such as Supplier websites.
RB – Indicated that Pharmac was looking at commissioning Healthify to undertake the
production of some resource material this would be supported by information from NZSSD.
HV – Indicated that DNZ could act as the primary conduit for patient centric supporting
information.
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HV – Indicated that DNZ would provide regular updates on the process via its website and
Facebook page which had a significant reach into the Diabetes community.
JCL – Noted that it would be important that people looking for information would source
information that was consistent and accurate across multiple sites.
JCL – Indicated that it would be important from an implementation perspective that patients
could access information equal y across al of the proposed products so they could make good
informed decisions as to which product they should select, this was particularly important in
regards the Ypsopump as it was not incumbent in the market and patients would likely do a lot
of research prior to deciding on the brand of insulin pump.
JCL – Indicated that Pharmac had been having weekly catch-ups where possible with NZSSD to
ensure that the voice of the clinician community was incorporated into the decision and
implementation process
CE – Indicated that it was important that information was also available to the primary care
sector as GP’s would be the primary interface for prescribing of CGM’s
HV – Described the work that DNZ had been doing with various other agencies such as the
police and AVSEC informing them around interacting with people using diabetes technology
such as CGM’s / Insulin pumps.
HV – Indicated that it would be important to have robust worked up FAQ’s so that people could
easily self-problem solve around things such as failed CGM’s and getting replacements, noted
that DNZ had been working with the identified preferred suppliers regarding the type of
information that should be available on their websites.
RB – Indicated that Pharmac would stay in regular contact as the comms plan was developed.
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Document 2
FILE NOTE
Subject:
Pharmac/Diabetes NZ
Event Type:
Meeting
Author:
Casie Hanrahan
Attendees:
Pharmac
Casie Hanrahan – Senior Implementation Advisor
Diabetes NZ
Jo Chapman – Head of Business Development Diabetes NZ
Heather Verry – Chief Executive Diabetes NZ
Location:
Teams
Date event took place:
24 June 2024
Meeting objectives
•
Understand requirements/suggestions for education to support people affected by this
proposal;
•
Understand possibility of commissioning resources to be created by and hosted on
Diabetes NZ website.
Discussion
CH – explained if the proposal is approved, we understand people living with diabetes would
require support. We have got quite a lot of feedback throughout this process, but want to gauge
what that Diabetes NZ thinks this support should look like, and potential for Pharmac to
commission the creation of supporting resources for people living with diabetes via Diabetes NZ
and host these on Diabetes NZ website (and link to this from other sites including Pharmac, NZF,
Healthify and HealthPathways), and what that would look like.
HV – very keen to help support people living with diabetes, want there to be one source of
information as otherwise it is confusing for people living with diabetes, would see themselves
being able to create some general resources about funded CGMs to aid people living with
diabetes choice, and lists of FAQs for prescribers, people living with diabetes, pharmacists
(based on questions they have received in past). They see this being a hub for people living with
diabetes, with links to supplier created resources for specific product information.
JC – understand we can’t give any closer timeframes at this stage, but would be good if we could
work together and supply the info that we can so that Diabetes NZ could work towards having
something up and running with the intention of pushing go as soon as the date is confirmed.
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CH – confirmed this would be possible - intent to pul together an update (brief type thing) with
info that we can share at this stage so that Diabetes NZ can start working on this.
HV – developed COVID-19 resource at speed, her and Jo to pul together plan about what they
think is needed, what they can do to support, and what this would look like.
CH – closed the meeting and confirmed this sounds like a reasonable approach. Thanked for
time and ability to work collaboratively. Pharmac intend to draft a brief for this work and stay in
touch via Teams/email going forward to ensure we can make this as easy and seamless as
possible.
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Document 3
FILE NOTE
Subject:
Pharmac/Diabetes NZ
Event Type:
Meeting
Author:
Casie Hanrahan
Attendees:
Pharmac
Conal Edwards – Senior Therapeutic Group Manager
Casie Hanrahan – Senior Implementation Advisor
Diabetes NZ
Heather Verry – Chief Executive Diabetes NZ
Location:
Teams
Date event took place:
12 July 2024
Meeting objectives
•
Understand additional staffing requirements in Diabetes NZ proposal for support (0800
line and youth coordinator hours);
•
Understand whether suppliers desire to reduce support line (from 24 hours as initially
proposed to finishing at 7pm) is viable.
Discussion
CE – gave update about where proposal is at the moment.
CH – touching on DNZ’s proposal for support, we are happy with the website, FAQs, and social
media, but have a couple of questions about the phone line, and the youth coordinator, and
whether Pharmac is the most appropriate funder of this additional staffing.
HV – around 9 YCs around the country, they are restricted in terms of hours. This proposal is for
increased support as they find people stil pick up the phone and don’t always read/understand
the information provided. Suggested having this support for 1 month and then review.
CH – also wanted to check whether the suppliers have been in contact with DNZ about this type
of support, or support in general, as we were thinking this could be something that would be
useful for the supplier to fund.
Document 3
HV – have been in touch, they are encouraging suppliers to have very clear resources/ web
pages that DNZ can link through to (as they don’t want this info directly on their website
because it wil need to be updated, but want to link through to this). They are going to review
the supplier information from a consumer lens for them.
CE – we have also recently had discussions with the suppliers about the level of phone line
support. Initially the proposal is for 24 hours, suppliers are saying based on Australia that they
want to reduce this. Can you see this being an issue?
HV – if something goes wrong afterhours this could cause an issue. Suggested that at least
maybe for the first month they have a 24 hour line. Or perhaps could offer 7 days a week.
CE – there is also discussion around who consumers should call if there is an issue. Eg should this
be pump supplier, CGM supplier, or doctor? This would be good to have as an FAQ directing to
the correct avenue for help.
HV – keen to also have this in their FAQs, in addition to the patient process for initiating these
devices.
CH – next steps: Casie to discuss this proposal internal y, and be in touch ASAP, probably early
next week.
HV – asked about Trulicity – sometimes having people say they can’t get this. Are we surprised
to hear this?
CE – not surprised, this is most likely is due to the distribution chain. Expecting this to be
alleviated in the coming months.
Thanked for time, wil be in touch soon.
